Sign up by: 30 April 2025
This is a 5-year study which aims to evaluate and characterize frontotemporal lobar degeneration (FTLD) patients and asymptomatic individuals belonging to family with a strong history of an FTLD syndrome and their caregivers. This study seeks to learn more about how FTLD syndromes progress over time and to develop new tools that can aid with diagnosis, treatment and monitoring of FTLD.
Key Details
Study Sponsor: Funding: NIH International Study on FTD
Location: In-person (Required at Toronto Western Hospital)
How Often: Yearly
Compensation: Yes (Participants will be compensated for their travel, time and parking.)
Contact: Daniela Mora-Fisher, Clinical Research Coordinator
[email protected]
(416) 603-5914
Research Studies
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Questionnaire
Longitudinal Frontotemporal Lobar Degeneration (ALLFTD)
Interview/Focus Group
Four Repeat Taupathy Neuroimaging Initiative
Sign up by: 01 September 2025
This study follows people with progressive supranuclear palsy (PSP) and corticobasal degeneration (CBD) for up to 2 years and compares their brain changes with healthy volunteers of the same age. Researchers hope to learn more about how patients with PSP and CBD progress over time and which measures are best for tracking change and predicting progression. Various measures including brain imaging, cerebrospinal fluid analysis, eye tracking, blood markers and neuropsychological testing will be measured.
Key Details
Study Sponsor: Mayo Clinic NIH
Location: In-person (Required at Toronto Western Hospital)
How Often: A few times a year + Yearly
Compensation: Yes (Participants will be compensated for their time and expenses)
Contact: Daniela Mora-Fisher, Clinical Research Coordinator
[email protected]
416-603-5914